katrap40 ([info]katrap40) wrote,
@ 2007-05-24 21:25:00
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Entry tags:breast cancer, cancer and hair loss, cancer blogs

Hair
Right on cue, my hair started falling out the day of my second chemo treatment. I had decided not to shave my head, though it would definitely have made it easier, because I wanted to see what it was like to lose something I had always taken for granted.

It was interesting, and it was also messy and physically painful, which they don't tell you, and emotionally traumatic.

The first couple days, I felt like my hair was some kind of installation sitting on my head; if I didn't mess with it, it would be okay, but any time I touched a hair, it came out. So I put a scarf over it to try to "keep it on." The scarf also helped dull the sometimes burning, sometimes bruised feeling in my scalp. When I would take off the scarf, or it would slip off during sleep, there would be gray and dark coils everywhere my head had touched.

By Monday, the wastebasket in the bathroom was full of what looked like an odd sort of hedgehog, but because my hair is so thick, I still had more or less a full head of hair. When I would take off the scarf, there would be a Brillo-like wedge sitting on top waiting to be plucked off. I brushed my hair out gingerly, but was still afraid to wash it. That night, I told a friend, "Now I am at the combover stage." She said she would call me The Donald.

Yesterday, finally, my scalp was itching too much, so I gave up and decided to see if I could make it all come out. I stood in front of the bathroom mirror and yanked out handful after handful, then washed my head/hair and pulled out more when it was wet. By the end of the day, I looked like Ben Franklin, with a ring of hair at the bottom of a bald head. Actually, I didn't look like Ben because my head turns out to be a perfect egg shape, no news to friends who already suspected I was an egghead.

Last night I slept without a scarf for the first time since Thursday. When I woke up I looked in the mirror and almost screamed.

"Who is that ancient woman?" I wondered.

I no longer look like an eggheaded Ben Franklin. Now I look like Scrooge or Bob Cratchett, whichever one looked like a skeleton with a couple tufts of white hair coming out of his skull. Honestly, I always knew my hair was important to me, despite the fact that I never heeded my mom's implorations to "do something with it." But I never quite realized how important hair is to how we perceive ourselves and each other. With my hair, which was really mostly gray by now, I think I looked just about my age, maybe a few years younger. Without it, I look 100 years old. Every wrinkle and line in my face jumps out.

Plus my scalp itself, which still hurts, is kind of pasty white. How do all those cool young women who shave their heads for fashion pull it off? And what am I supposed to do now? Rub it with olive oil? Dust it with corn starch, like you do with babies to keep their tender skin from getting irritated? And the most important question of all, when you're bald, do you wash your scalp with shampoo, because of all the nutrients and soothing herbs that they put in shampoos, or do you wash it with soap like the rest of your skin? Advice from the experienced welcome.

(Incidentally, for those of you who are wanting to know about more pragmatic things, the treatment went fine, Thursday and Friday were not too bad, Saturday and Sunday were bad, Monday was pretty bad, since Tuesday I've been less nauseous but still really tired. Had acupuncture today, which I think helped, and am hoping to be feeling good by Sunday.)

Oh, there's a good photo of me pre-baldness, with an article about a campaign to get the San Francisco LGBT Film Festival to stop taking Israeli government money, at http://www.ebar.com/news/article.php?sec=news&article=1838.



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To Kate from Tori
(Anonymous)
2007-05-27 01:03 am UTC (link)
Dear Kate,

It's very painful for me to read what you're going through. My hair is very important to me too. Once when when I was little, my mom took me to a beautician to get it cut. I cried so much that the beautician wouldn't cut it. As you remember, I had it long in LAG. I went back to that hairstyle about ten years ago, and now I can nearly sit on it. Although I'm 55, it's still reddish-blonde. It has always been my best physical asset.

I remember your lovely, thick hair, especially when you had it long too. I'm sorry losing it was so painful, both physically and emotionally. When it grows back, you can have a butch look for a while. That could be quite fun. In the meantime, I have heard of women who lost their hair wearing colorful scarves on their bald heads. If that's too femme, you could consider wearing a jaunty cap for that butch look again. There used to be a good hat shop on Telegraph Ave just south of Dwight Ave, on the west side. Why not experiment with different looks while you have the chance?

As for wrinkles, mine bug me too. Here's how I deal with them: Now is the time for us to put our politics into practice and accept the crone in ourselves. It's time for us to become wise elders. When I was younger, I really admired older women who were feisty. Now I am one. It's actually liberating and kinda fun. Since I turned 50 I don't take shit from anyone.

On a different topic, I received your reply to my post and answered it. However, the mailer daemon rejected it, saying "the user account is over quota." I have pasted in my letter below, so you can read it. I had a similar problem writing you when you were in Palestine. My email bounced, so I deleted your address from my address book. Thus, we've been out of touch for years. Could you check into the problem with your server? I would really like to be able to write you directly without posting on your website for all the world to see.

Here's the letter that bounced:

Dear Kate,

Wonderful to hear from you! Patrick and I chose a university that's in
a fairly clean area. There's no industry here. The main pollution
problems are agricultural burning and a coal-fired boiler for the
students' hot showers. We have natural gas for cooking and electric
heat. Our apartment is in an old section of the campus, with a forest
on the ridge behind us. We're surrounded by trees and flowering bushes.
This place is a real bird sanctuary, so we hear lots of amazing
birdsong almost 24 hours a day. We walk to our classes, to eat the
tasty food served up in the student cafeterias, and to do what little
shopping is necessary.

My chemical sensitivity is a lot better, thanks to 2 decades of living
in the boonies and hiking a lot, plus taking supplements recommended by
a naturopathic doctor.

We'll probably stay here a while, though we occasionally inquire about
ESL jobs in other countries. We haven't found a better deal. We get a
free apartment, and the cost of living is so low that we save about 90%
of our salaries. We never could do that in the States! We've been
spending the savings on travel during our generous holidays. We get a
6-week vacation in the winter, a 6-week vacation in the summer, a
1-week vacation in the spring, and a 1-week vacation in the fall. We've
been to Mongolia, Tibet, Thailand and India, plus many places in
Sichuan, the province where we're located.

I've written about all these travels, plus about our life here in
China, at length. I'll add you to my e-list for future travelogues. I
don't have a blog. Unfortunately, I have a very heavy workload this
semester, so I haven't had time to write anything for a few months.

Gotta run to class now. Hope you're weathering the chemo okay.

Love,

Tori

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baldness
(Anonymous)
2007-06-05 05:05 pm UTC (link)
hello,

very sorry to read about you losing your hair, that's a lot of no fun. you asked for suggestions, so here goes...

I've got a skin condition that affects my scalp (think dandruf so bad it bleeds) and forces me to keep my hair very short or shaved. what i do is wash my scalp with warm water and mild soap to keep the pores and hair folicles clean and then use a light lotion/sunblock. very few things suck more then getting your scalp sunburned and having the skin peeling off head. the skin on your skull is very thin to start with so it's just about the worst place to get sunburned.

personally, i don't use shampoo. most shampoo isn't really very good for your scalp anyway....

you might try wearing a hat, cotton or a fabric that breathes but will block light and prevent burns is best.

that's about all the helpful advice i can offer, i hope you come through ok!

lynx
blog.circlealpha.com

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